#TBT – “The Future of 645 – Mitochondrial Myopathy Awareness”

Five years ago nearly to the day, Adam Kohr set off on an ambitious 645 mile journey to raise awareness for Mitochondrial Myopathy, as well as other Mitochondrial diseases that afflicts somewhere between 1 in 6000 and 1 in 4000 people today. The GoFundMe page that Adam set up also raised $17,000 out of a stated goal of $10,000, for the purpose of raising awareness for his brother Andy, who suffers from Mitochondrial Myopathy, as well as for Adam’s chosen charity: the United Mitochondrial Disease Foundation.

I was lucky enough to be able to catch up with Adam as he neared my hometown in northeast Indiana. We discussed how taxing the journey had already been on him, how the first few tearful nights of his cross-country journey were the roughest and scariest for him to overcome, but also the good-hearted people he encountered along the way as well.

I’m happy to report that Adam did make it to Harrisburg successfully, and I’m still proud of him to this day.

1 thought on “#TBT – “The Future of 645 – Mitochondrial Myopathy Awareness””

  1. Is there an update on his brother?

    On Thu, Jun 18, 2020 at 4:36 PM, Thought Backlog wrote:

    > Andrew Michael Miller posted: ” > https://www.youtube.com/watch?v=lL3uxVt4V9A Adam Kohr, en route to > Harrisburg, PA, 645 miles away from his home in Chicago, IL. Five years ago > nearly to the day, Adam Kohr set off on an ambitious 645 mile journey to > raise awareness for Mitochondrial” >

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